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Psoriasis Patient Stories

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Welcome Winter Sunset

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This site is dedicated in Loving Memory to
Dicksey Walpole Ledbetter Gurney
May 29, 1948 - October 25, 2001

Dicksey (Penny's sister, teacher, best friend) suffered with Psoriasis, from 1971 till her death. She received little relief in her lifetime. PUVA was the only treament that ever worked for her and Kaiser stopped allowing her the treatment in 1995.
 
Dicksey died at 52 still plagued by Psoriasis!

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H Penny McCoy

Penny has been inflicted with Psoriasis for over 30 years..

'Today' Penny is seeing some CLEARing of her Psoriasis.

Penny has been treated with Methotrxate, Amevive, Enbrel with NO successes!! Raptiva, which Penny took for 5 years offered great relief, but has been withdrawn from the market.. Penny is now taking Stelara.

Penny did encounter shorter and less frequent flareups with, Neoral.
But, Neoral is a 'short term' Psoriasis care program for Psoriasis.

Neoral had been the ONLY medication that had ever REALLY helped Penny, then in December 2003, Penny was introduced to Raptiva.  Her first treatment was in January 2004. 

Raptiva was the 'divine intervention' for Penny, but has since been withdrawn from the market.. Penny is currently receiving Stelara for treatment of her psoriasis.

Throughout Penny's life as a Psoriasis sufferer. She learned that if you Stay Happy, YOU Stay Healthy!! Penny prayed daily to her Lord for a divine intervention. Penny is also a sufferer of DVT, Diabetes, FMA and is a Cancer Survivor!!  Penny believed that for her to live with her conditions she had to, at MANY times emotionally, work diligently to Stay Happy!!

Stay Happy, Stay Healthy!!

Penny's motto for her life is Stay Happy, Stay Healthy!! she noticed in June of 1979, shortly after her Father died of Cancer, that stress was a large factor in aggrevating her many health issues.. Penny's Mother was diagnosed with Breast Cancer in 1980, again her health suffered, and again she used the phrase **Stay Happy, Stay Healthy!!** to comfort herself, and control the flaring of her diseases.. Penny had her diseases under control by the time Penny's Mother went to be with Our Lord, in September of 1981.. since that time, Penny has never forgotten how powerful that phrase is in her life!

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Ryan J McCoy
Ryan is the Grandson of Roger & Penny.. at the young age of 8 Ryan was diagnosed with Psoriasis of the Scalp.. he also, currently suffers from full blown Psoriasis, covering over 80% of his body.

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At the age of 26 Ryan is a Positive Young Man with a Great Outlook on Life.
Ryan is currently controlling this disease, and NOT let psoriasis control him!!

 
 


~*~ from the Grandmother of Aubrey Lynn ~*~
 
I really understand all that you have been through. 
 
My daughter was 23 years old, 8-1/2 months pregnant with a little girl and dying of cancer. 
 
The doctors did not know what was wrong with her and did not discover her cancer until she was almost skin and bones and choking to death early one morning. 
 
The baby was taken 2 weeks early because the doctors said there was something wrong with her liver and her baby would die if she did not have it now. 
 
Earlier in her pregnancy they had sent her to a psychiatrist because they felt she was depressed was the only reason she was losing weight.  The doctors could not find any thing wrong with her and she continued to lose weight. 
 
She ate three meals a day, was nursing the baby and trying to raise two young sons, 3 yrs and 2 yrs old (without a husband).  Her husband left her when he found out she had cancer. what a Jerk.
 
Anyway, her baby Aubrey Lynn was 5 months old when my daughter woke up choking and went in to emergency.  They took x-rays finally and discovered massive tumors wrapped around her heart, her lungs, her throat - everywhere.  They figured she had cancer for 3 to 5 years at least based on the size of the tumors. 
 
It was Hodgkin's and it was not detected via blood samples.  She had to quit nursing Aubrey and went into full blown Chemo.  It was not easy for her - she was so young and I was terribly shocked.  I went into survival mode and helped her with the three young ones while I worked too.  She is now in remission for the last 7 years, and has had two more sons since then.
 
And that's another sad story about the sons - especially the 3rd son - now 4 years old.
 
Submitted 9-7-2005 by S A SMITH
 

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Cory Brozik

Cory is currently eighteen, a senior in high school, and he has scalp psoriasis.. he is a member of the Bakersfield Support Group.. and the Historian for the group.

Cory, is eighteen, and the 'official' secretary for the Stay Happy, Stay Healthy Psoriasis Support Group.

Cory has plans to 'forever' be an advocate for psoriasis treatment and eventually a cure!

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Received from Matt.. Wednesday, December 07, 2005 11:32 AM

Psoriasis, extreme condition for past six years.

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You are in Our Prayers, Matt!

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Thursday, January 05, 2006 6:05 AM - Jean Dennis wrote

"Besides having this affliction all over my hands making it difficult to bend and use them, it is just very plainly, painful! 

I also have arthritis and wonder if they are related, and will have a Dr. look into it."


Jean, You are in our Prayers!

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... February 10, 2009 ...
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... November 30, 2002 - 2010 ...

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